ALS Digital Health Workshop Findings

Amyotrophic lateral sclerosis (ALS) digital health work at the Ametris Digital Data Summit (ADDS) 2025 gathered researchers to plan digital measures for ALS trials. The NEALS poster shows people with ALS are willing to wear actigraphy devices if it reduces clinic visits, with comfort as the main worry. Takeaways include evidence needs, tool limits, and roles for researchers, regulators, and patients as digital tools move toward real-world trials.