I didn’t set out to start a company. I was diagnosed with ALS and needed a way to make sense of what I was trying. Supplements. Changes in diet. Symptoms. Progression. I needed a place to track it all, because no one else was doing it for me. That became the start of StackDat.
In the beginning, it was personal. I wasn’t even sure it would go beyond me. But as I built, I started to see something bigger. The app began to shape into something other people could use too. So I made it public. I shared what I was learning. I wrote blog posts and talked about what I was trying and why. That started a small but growing community of people who were also trying to make sense of their condition.
Over time, one thing became clear. The tools for ALS / MND are too few, too fragmented, and in some cases, too disconnected from people’s real lives. Research portals exist, but they often ask people to spend time reporting data without offering any real value back. Clinics provide care, but they don’t always have a simple way to track what's working or what people are trying between visits. And in many parts of the world, care teams are understaffed, trying to manage growing needs with shrinking resources.
We think there’s a better way. And we’re not alone. Through another founder, I was introduced to someone building similar tools for epilepsy and Parkinson’s. It didn’t take long for us to realise our paths aligned. We’ve now joined forces to build a single platform that supports individuals day to day, helps care teams coordinate more effectively, and captures data that might help drive research forward.
That platform is called Curalysis. You’ll be able to track your supplements, symptoms, equipment needs, appointments, and share relevant info with your care team if you choose. We’re also piloting ways to help MND associations use the data to reach out with equipment guidance and support. It’s a loop we want to close. From the individual, to the system, and back again.
So what does this mean for StackDat?
For now, nothing changes. The app will stay live. Your data is safe. But eventually, StackDat will wind down, and we’ll help users move across to the new platform. Most of the blog posts have already been moved. When Curalysis launches, we’ll let everyone know and make it easy to switch.
Thank you to everyone who’s supported this project, read my posts, tried the app, and shared your ideas. You helped build the foundations for what’s next. I hope you’ll join me for what comes after.
